My reason for posting today is to highlight an upcoming event.
www.worldwidevillage.org/festival-for-haiti-2010
My dad was involved with this non-profit group called World Wide Village, which he served while being on the board of directors. During this year’s festival, where they raise money for Haiti, my dad is being recognized for his contributions to World Wide Village. My wife and I will be attending and you are warmly welcome to join us in supporting a good cause.
On a personal note, it's hard to believe that it has been nearly two and a half months since my dad passed. Everyone is well, all things considered.
Friday, October 29, 2010
Haiti
Saturday, August 14, 2010
Obituary
John Phillip Nicholson
(December 31st, 1951 - August 14, 2010)
Age 58 of Shoreview. Died August 14, 2010. Preceded in death by his father, John A. Survived by his adoring wife, Caren; children, Adam (Melissa) and Jamie (Travis), Aaron (Laura) Chaney and Kyle Chaney; grandchildren, John, Noah and Berea; mother, Norma “Mimi”; siblings, Pam (Butch) Niven, Tim (Karen), Jeff (Elizabeth); nieces and nephews. John loved serving the Lord and using his gifts and talents to further the Kingdom.
Gathering 4-7PM Tuesday, August 17 at HOLCOMB-HENRY-BOOM-PURCELL, 515 Hwy 96 at Mackubin, Shoreview (651-482-7606).
Memorial service 3PM Wednesday at FIVE OAKS COMMUNITY CHURCH, 4416 Radio Drive, Woodbury.
Private interment Fort Snelling.
Memorials to enCompass Church
Link to the online obituary
(December 31st, 1951 - August 14, 2010)
Age 58 of Shoreview. Died August 14, 2010. Preceded in death by his father, John A. Survived by his adoring wife, Caren; children, Adam (Melissa) and Jamie (Travis), Aaron (Laura) Chaney and Kyle Chaney; grandchildren, John, Noah and Berea; mother, Norma “Mimi”; siblings, Pam (Butch) Niven, Tim (Karen), Jeff (Elizabeth); nieces and nephews. John loved serving the Lord and using his gifts and talents to further the Kingdom.
Gathering 4-7PM Tuesday, August 17 at HOLCOMB-HENRY-BOOM-PURCELL, 515 Hwy 96 at Mackubin, Shoreview (651-482-7606).
Memorial service 3PM Wednesday at FIVE OAKS COMMUNITY CHURCH, 4416 Radio Drive, Woodbury.
Private interment Fort Snelling.
Memorials to enCompass Church
Link to the online obituary
With the Lord
John Phillip Nicholson left his earthly body and went home to the Lord at 2:00am this morning.
He left while surrounded by family including his wife Caren, myself, and his daughter Jamie. He is loved, and missed.
Godspeed, dad, enjoy the party in heaven. I will see you soon.
Love your son,
Adam
- Posted from a mobile device
He left while surrounded by family including his wife Caren, myself, and his daughter Jamie. He is loved, and missed.
Godspeed, dad, enjoy the party in heaven. I will see you soon.
Love your son,
Adam
- Posted from a mobile device
Friday, August 13, 2010
Bible
Psalms 16:7-11
I will bless the LORD, who hath given me counsel: my reins also instruct me in the night seasons. I have set the LORD always before me: because he is at my right hand, I shall not be moved. Therefore my heart is glad, and my glory rejoiceth: my flesh also shall rest in hope. For thou wilt not leave my soul in hell; neither wilt thou suffer thine Holy One to see corruption. Thou wilt shew me the path of life: in thy presence is fulness of joy; at thy right hand there are pleasures for evermore.
We've been reading today to John out his personal Bible. In his Bible he has highlighted many passages that he deemed as key/noteworthy. The above passage was one of those.
It's been a long day today... so far. Lots of emotion. Two different times we thought he was passing which is hard to recover from.
He still fighting, only God knows when.
Adam
- Posted from a mobile device
I will bless the LORD, who hath given me counsel: my reins also instruct me in the night seasons. I have set the LORD always before me: because he is at my right hand, I shall not be moved. Therefore my heart is glad, and my glory rejoiceth: my flesh also shall rest in hope. For thou wilt not leave my soul in hell; neither wilt thou suffer thine Holy One to see corruption. Thou wilt shew me the path of life: in thy presence is fulness of joy; at thy right hand there are pleasures for evermore.
We've been reading today to John out his personal Bible. In his Bible he has highlighted many passages that he deemed as key/noteworthy. The above passage was one of those.
It's been a long day today... so far. Lots of emotion. Two different times we thought he was passing which is hard to recover from.
He still fighting, only God knows when.
Adam
- Posted from a mobile device
Another day
Yesterday there were a lot of visitors again which was nice. So many people have nice words and memories to share.
John continues to shut down. This morning, as was late yesterday, his body is having a hard time regulating it's body temperature. We continue to keep an eye on him and adjust the blankets on him as needed.
I'm not sure if he can feel anything in his body anymore and he doesn't move or squeeze his hand. If you rub the bottom of his feet, which are ticklish there is no response.
He breathing is also more labored than early yesterday.
I know for me, although I'm not "ready" for him to pass, I am ready. Seeing him lay here with his body shutting down just doesn't seem like the right way to go. For now whispering various Psalms into his ear will have to suffice.
Adam
- Posted from a mobile device
John continues to shut down. This morning, as was late yesterday, his body is having a hard time regulating it's body temperature. We continue to keep an eye on him and adjust the blankets on him as needed.
I'm not sure if he can feel anything in his body anymore and he doesn't move or squeeze his hand. If you rub the bottom of his feet, which are ticklish there is no response.
He breathing is also more labored than early yesterday.
I know for me, although I'm not "ready" for him to pass, I am ready. Seeing him lay here with his body shutting down just doesn't seem like the right way to go. For now whispering various Psalms into his ear will have to suffice.
Adam
- Posted from a mobile device
Thursday, August 12, 2010
Nothing new
Today is a lot of the same as yesterday with some minor exceptions. He has been taking less pain medication and his breathing has deepened. If he weren't sick, you'd think we was just sleeping all day. Sadly I think it's him slipping to a point where being able to have conscience responses with others isn't possible.
Last night we had guests till around 9pm and had a good time reminiscing tales of Johns life. We're making the best of the situation and I think dad would be a little mad that we are not sharing our wine with him. :)
Adam
- Posted from a mobile device
Last night we had guests till around 9pm and had a good time reminiscing tales of Johns life. We're making the best of the situation and I think dad would be a little mad that we are not sharing our wine with him. :)
Adam
- Posted from a mobile device
New blog visitor info
I've been looking at the statistics and visitor tracking data on this site and can see that there are quite a few new visitors. Here are a few links to some prior posts that will help you see where he has been, information on the cancer he has (Stage 4 Glioblastoma Multiforme - or GBM), and how things have progressed.
How it started: http://prayersforjohn.blogspot.com/2009/11/what-happened-short-version.html
What he has: http://prayersforjohn.blogspot.com/2009/11/surgeon.html
Pre-surgery two: http://prayersforjohn.blogspot.com/2010/06/now-and-then.html
Feel free to browse the archive links on the right side of the page to see any of the previous posts.
Wednesday, August 11, 2010
Peace
First off I'd want to appoligize to anyone reading this that is finding it too graphic. I've been very cognizant of the readership and am trying to walk a fine line between vagueness of the situation and too much detail. Unfortunately as things get worse each post will become harder to read, including this one. Also, I have decided not to post any more pictures as I feel they may be overwhelming. Thanks in advance for your understanding.
Day one at home is winding down. There have a number of friend and family that swung by which was very nice. A few folks even dropped off some goodies which were graciously accepted - then devoured.
In the morning will be his third day of no food or water which is common when the body is shutting down. John continues to be cared for with frequent meds being administered, being repositioned, people talking to him and of course the occasional Bible passage being read to him.
Tonight there are only a few of us here (I'm spending the night) and we are taking shifts (kind of) to make sure someone is keeping him company. Hopefully we all get some rest; I know we need it. It seems that heavy hearts don't sleep well.
Adam
- Posted from a mobile device
Day one at home is winding down. There have a number of friend and family that swung by which was very nice. A few folks even dropped off some goodies which were graciously accepted - then devoured.
In the morning will be his third day of no food or water which is common when the body is shutting down. John continues to be cared for with frequent meds being administered, being repositioned, people talking to him and of course the occasional Bible passage being read to him.
Tonight there are only a few of us here (I'm spending the night) and we are taking shifts (kind of) to make sure someone is keeping him company. Hopefully we all get some rest; I know we need it. It seems that heavy hearts don't sleep well.
Adam
- Posted from a mobile device
Home
He as arrived home in from the hospital thanks to a ride from a United ambulance.
Caren is welcoming friends and family that want to come by for a last visit. Feel free to email me for that info at:
nicholi518 at gmail dot com
His temp had dropped to 95 degrees and his O2 levels are also lower. He does appear comfortable and is getting drugs for any pain.
Adam
- Posted from a mobile device
Caren is welcoming friends and family that want to come by for a last visit. Feel free to email me for that info at:
nicholi518 at gmail dot com
His temp had dropped to 95 degrees and his O2 levels are also lower. He does appear comfortable and is getting drugs for any pain.
Adam
- Posted from a mobile device
Tuesday, August 10, 2010
Post comments
Just a refresher, all of the comments anyone leaves on the posts come to me. I then forward them onto Caren when relevant.
If I don't email you back it's not that I didn't see your post or don't receive them. All of them are appreciated and I will try to reply when I can.
Thanks also for the feedback; we appreciate all of it. It's very overwhelming the support we have been getting through the blog, visits, phone calls, email and prayer. Thanks again!!
God bless,
Adam
- Posted from a mobile device
If I don't email you back it's not that I didn't see your post or don't receive them. All of them are appreciated and I will try to reply when I can.
Thanks also for the feedback; we appreciate all of it. It's very overwhelming the support we have been getting through the blog, visits, phone calls, email and prayer. Thanks again!!
God bless,
Adam
- Posted from a mobile device
Last steps
Romans 14:7-9
7 None of us lives to himself, and none of us dies to himself. 8 If we live, we live to the Lord, and if we die, we die to the Lord; so then, whether we live or whether we die, we are the Lord's. 9 For to this end Christ died and lived again, that he might be Lord both of the dead and of the living
Today John is doing worse, more so than normal. His kidney continue to fails further and his health continues to fade. Just looking at him you can see he's extremely fatigued. His body is losing the war against this cancer and we have reached a fork in the road.
We have met with the doctors and have come to an agreement that the best thing for him is to get him out of the hospital and headed home. While home he will be able to be more at peace in a familiar environment. Hospice care is being setup and should be starting tomorrow some time.
We always knew these days were coming... and now they are here. Thanks to everyone for your continued prayers and unacknowledged behind the scenes support.
7 None of us lives to himself, and none of us dies to himself. 8 If we live, we live to the Lord, and if we die, we die to the Lord; so then, whether we live or whether we die, we are the Lord's. 9 For to this end Christ died and lived again, that he might be Lord both of the dead and of the living
Today John is doing worse, more so than normal. His kidney continue to fails further and his health continues to fade. Just looking at him you can see he's extremely fatigued. His body is losing the war against this cancer and we have reached a fork in the road.
We have met with the doctors and have come to an agreement that the best thing for him is to get him out of the hospital and headed home. While home he will be able to be more at peace in a familiar environment. Hospice care is being setup and should be starting tomorrow some time.
We always knew these days were coming... and now they are here. Thanks to everyone for your continued prayers and unacknowledged behind the scenes support.
Monday, August 9, 2010
Awake
They took him off the ventilator this morning and woke him up... all of which are good signs of recovery.
The not so good news is his kidneys aren't working and are in "failure". To my surprise the doctors are saying it's too really early to worry about because they can still come back and to a "non-failure" state.
Not being around hospitals much, it's interesting that some of the tougher drugs are kept locked up, even when they are being administered.
Adam
- Posted from a mobile device
The not so good news is his kidneys aren't working and are in "failure". To my surprise the doctors are saying it's too really early to worry about because they can still come back and to a "non-failure" state.
Not being around hospitals much, it's interesting that some of the tougher drugs are kept locked up, even when they are being administered.
Adam
- Posted from a mobile device
Location:Smith Ave N,St Paul,United States
Sunday, August 8, 2010
Update
First, let me apologize for taking such an extended break between updates. At times I thought of posting, but there is a fine line between relevant updates to hundreds of blog following friends and family and documenting someone elses life day by day - when it isn't my life to broadcast and most days is very uneventful.
Since I last posted, much has happened.
His strength has been slowly zapped. Through the combination of lack of exercise, endless fatigue, the steroids (which "eat" muscle) that he's taking because of the cancer; he has progressed from walking on his own, to casually using a cane, to needing a cane, to using a walker. He needs a lot of help from others for day to day tasks that healthy people take so easily for granted.
The bigger news:
As I type John is back in the hospital for a second time in just over 2 weeks. A few weeks ago we noticed some swelling on the side of his head near his incision. He went in, they did some scans and determined no surgery was going to be needed and that some antibiotics would clear up the infection. A day later he went home and the drugs were being administered by Caren. All seemed good.
Fast-forward to last night, 6pm. His breathing of late has been very labored and after a discussion he was brought down to the ER to be evaluated. It was found that his O2 levels were in the low 80's (should be 95% or up), his heart beat was irregular, he was running a 103 degree fever, and he has pneumonia. They sedated and intubated him and were able to clean out a lot of the fluid in his lungs. They began giving him some very strong antibiotics that are to fix most of those issues - if pneumonia is the cause of all of them. As for a correlation between the infection and pneumonia, early expert medical options are of the belief that these are unrelated.
This morning he is stable and in much better condition then he was 12 hours ago. His temperature is gone and they've turned down his oxygen - all good signs of healing.
I will post more as I know.
As always, thanks for your continued support and prayers.
- Adam
Since I last posted, much has happened.
His strength has been slowly zapped. Through the combination of lack of exercise, endless fatigue, the steroids (which "eat" muscle) that he's taking because of the cancer; he has progressed from walking on his own, to casually using a cane, to needing a cane, to using a walker. He needs a lot of help from others for day to day tasks that healthy people take so easily for granted.
The bigger news:
As I type John is back in the hospital for a second time in just over 2 weeks. A few weeks ago we noticed some swelling on the side of his head near his incision. He went in, they did some scans and determined no surgery was going to be needed and that some antibiotics would clear up the infection. A day later he went home and the drugs were being administered by Caren. All seemed good.
Fast-forward to last night, 6pm. His breathing of late has been very labored and after a discussion he was brought down to the ER to be evaluated. It was found that his O2 levels were in the low 80's (should be 95% or up), his heart beat was irregular, he was running a 103 degree fever, and he has pneumonia. They sedated and intubated him and were able to clean out a lot of the fluid in his lungs. They began giving him some very strong antibiotics that are to fix most of those issues - if pneumonia is the cause of all of them. As for a correlation between the infection and pneumonia, early expert medical options are of the belief that these are unrelated.
This morning he is stable and in much better condition then he was 12 hours ago. His temperature is gone and they've turned down his oxygen - all good signs of healing.
I will post more as I know.
As always, thanks for your continued support and prayers.
- Adam
Friday, June 18, 2010
Thursday, June 17, 2010
Up
Moved floors up to 7. Quieter, better view and a larger room. If all goes well, in 24 hours we can blow this taco stand.
The food however is getting progressivly worse. Today's meatloaf looked like day old canned cat food. We decided to take matters into our own hands - Papa Johns is in route with a XL and cheese sticks.
Adam
- Posted from a mobile device
The food however is getting progressivly worse. Today's meatloaf looked like day old canned cat food. We decided to take matters into our own hands - Papa Johns is in route with a XL and cheese sticks.
Adam
- Posted from a mobile device
Location:St Clair Ave,St Paul,United States
Hair
More good news... the latest procedure appears to have reversed his hair loss. Not sure though, you be the judge.
He also has a new passion for country music.
Adam
- Posted from a mobile device
He also has a new passion for country music.
Adam
- Posted from a mobile device
Sleep
Last night he had a rough night.
The kept putting a nebulizer on his face, which he kept throwing across the room. Being in the ICU, the noise doesn't subside at night which kept him awake. Seems like all the staff in the room this morning was aware of his "heightened excitement".
They got him up and walking today with a walker and he even did some stairs!
They're going to be moving him today up a few floors and possibly discharging tomorrow!
It's pretty remarkable the rate of recovery this time around. He's stronger than he was a week ago already, he seems a lot more chipper and his swelling has gone done. I'm really wondering why it's going so much better - mental prep? Prayer? Support? I'm choosing to believe it's all of the above.
Adam
- Posted from a mobile device
The kept putting a nebulizer on his face, which he kept throwing across the room. Being in the ICU, the noise doesn't subside at night which kept him awake. Seems like all the staff in the room this morning was aware of his "heightened excitement".
They got him up and walking today with a walker and he even did some stairs!
They're going to be moving him today up a few floors and possibly discharging tomorrow!
It's pretty remarkable the rate of recovery this time around. He's stronger than he was a week ago already, he seems a lot more chipper and his swelling has gone done. I'm really wondering why it's going so much better - mental prep? Prayer? Support? I'm choosing to believe it's all of the above.
Adam
- Posted from a mobile device
Location:Interstate 35E,St Paul,United States
Wednesday, June 16, 2010
Sitting
More baby steps today. Up 3 times standing, spent a couple of hours out of bed in a chair, ate solids and of course had a cookie dough blizzard.
It seems like every hour he's getting stronger. They said if a room were available they would have us up a few floors for therapy.
On the outside of the room they have these signs warning about the patient having had Chimo. Because of this they use special gloves when they work with him. I asked "why do you wear the special gloves"? The nurse said "it's to protect ourselves from catching anything, because of the chemo". I asked, "Why, would that be bad?". She thought for a moment and replied "yea, and and it's for our safety and hers" pointing to other nurse whose pregnant. I then followed up with "Well what about me or Caren? She's been living wih him and I've been in the room all day". She paused, then blamed protocol. I couldn't help but chuckle.
Adam
- Posted from a mobile device
It seems like every hour he's getting stronger. They said if a room were available they would have us up a few floors for therapy.
On the outside of the room they have these signs warning about the patient having had Chimo. Because of this they use special gloves when they work with him. I asked "why do you wear the special gloves"? The nurse said "it's to protect ourselves from catching anything, because of the chemo". I asked, "Why, would that be bad?". She thought for a moment and replied "yea, and and it's for our safety and hers" pointing to other nurse whose pregnant. I then followed up with "Well what about me or Caren? She's been living wih him and I've been in the room all day". She paused, then blamed protocol. I couldn't help but chuckle.
Adam
- Posted from a mobile device
Location:Interstate 35E,St Paul,United States
Risen
They took his turban bandaging off this morning along with some of his lines from the surgery.
They got him up, out of bed twice so far today. He even got as far as standing and marching in place. His reward? Ice cream. Life is good.
Adam
- Posted from a mobile device
They got him up, out of bed twice so far today. He even got as far as standing and marching in place. His reward? Ice cream. Life is good.
Adam
- Posted from a mobile device
Location:Interstate 35E,St Paul,United States
Chips
Late yesterday before I left he got his first oral anything - some ice chips along with a few mL's of water.
This morning he's a little more chipper and is asking questions of us between his cat naps. There is talk in the air that he may get out of bed today and into a chair - and out of the ICU... the one of many baby steps.
Adam
- Posted from a mobile device
This morning he's a little more chipper and is asking questions of us between his cat naps. There is talk in the air that he may get out of bed today and into a chair - and out of the ICU... the one of many baby steps.
Adam
- Posted from a mobile device
Location:Interstate 35E,St Paul,United States
Tuesday, June 15, 2010
Slow day
It's been a slow day today. Lots of rest and recovery. He's had a little fluid in his lungs which is expected. In the next 24 or so his lungs should open up and be clear.
Adam
- Posted from a mobile device
Adam
- Posted from a mobile device
Location:N Smith Ave,St Paul,United States
Sleeping
Lots of drugs, lots of naps... repeat.
This morning he continues to sleep between nurse checks and drug doses. He looks better than yesterday but still has the expected swelling. I think like last time we will be doing a lot of waiting until he regains some strength. He can talk and has all of his cognitive functions which is good. Hopefully in the next day or so we can have a little more two way communication.
Adam
- Posted from a mobile device
This morning he continues to sleep between nurse checks and drug doses. He looks better than yesterday but still has the expected swelling. I think like last time we will be doing a lot of waiting until he regains some strength. He can talk and has all of his cognitive functions which is good. Hopefully in the next day or so we can have a little more two way communication.
Adam
- Posted from a mobile device
Location:Interstate 35E,St Paul,United States
Monday, June 14, 2010
Night
The last of us are heading home for the evening. Thanks to everyone that has been praying and offering support in various ways. It's been a long day. Please pray for healing, pain relief, comfort and rest. God bless and good night.
Adam
- Posted from a mobile device
Adam
- Posted from a mobile device
Post-op visit
We were able to get in and see him. His eyes are open, he's responsive, able to squeeze hands, but definitely still sedated. He is on a CPAP which helps to breath deep. We are looking forward to the morning already where he should be able to communicate.
A special thanks to Dwayne - thank you for your generosity while hanging out in the waiting room!
Adam
- Posted from a mobile device
A special thanks to Dwayne - thank you for your generosity while hanging out in the waiting room!
Adam
- Posted from a mobile device
Movin'
Up to the ICU! We should be able to see him in 15 minutes once he gets situated.
Adam
- Posted from a mobile device
Adam
- Posted from a mobile device
Closed
He is closed up and heading to recovery. The cyst is gone and 90+ percent of the tumor.
Wow. How a day can swing.
Thanks for the continued prayers.
Adam
- Posted from a mobile device
Wow. How a day can swing.
Thanks for the continued prayers.
Adam
- Posted from a mobile device
Big change!
The surgeon came in with an update.
They tried two plugs and they couldn't get the fluid from inside the cyst to come through it because it was too thick. They then tried to endoscopically to remove the cyst, which also didn't work. She then decided the bleeding was under control enough (he had a transfusion) that she could open him up. She went in and was able to take out the cyst fully, cauterize the tissue in that area and then take out more tumor.
The bad news is the recovery is now back to a week or more, which was the original plan when the day began.
He's currently undergoing another MRI and when they get the results back they will either take more out or close him up.
Well, now we know what the delay was. In my opinion it's really best case. The plug is no longer needed and they got more tumor out.
Adam
- Posted from a mobile device
They tried two plugs and they couldn't get the fluid from inside the cyst to come through it because it was too thick. They then tried to endoscopically to remove the cyst, which also didn't work. She then decided the bleeding was under control enough (he had a transfusion) that she could open him up. She went in and was able to take out the cyst fully, cauterize the tissue in that area and then take out more tumor.
The bad news is the recovery is now back to a week or more, which was the original plan when the day began.
He's currently undergoing another MRI and when they get the results back they will either take more out or close him up.
Well, now we know what the delay was. In my opinion it's really best case. The plug is no longer needed and they got more tumor out.
Adam
- Posted from a mobile device
Update
Well, looks like my estimate was wrong. Goes to show you how much longer things take around here. Rush, rush, rush... waaaaaaaaaaiiiiiiiiiiiiit, wwwaaaaaaaaiiiiiiiiiit, wwwwwaaaaaaiiiiiiiiiiiiit.
The crowd continues to grow.
Adam
- Posted from a mobile device
The crowd continues to grow.
Adam
- Posted from a mobile device
Scanning
The plug is in and the cyst is drained. He's being sutchered now and then having another MRI. In 2 hours I'm guessing he will be out.
Adam
- Posted from a mobile device
Adam
- Posted from a mobile device
Time
Surgery time went from 12+ hours to maybe 2 because of the change in scope.
We're getting more people here in the waiting area.
Adam
- Posted from a mobile device
We're getting more people here in the waiting area.
Adam
- Posted from a mobile device
Surgeon
Last time the surgeon was Dr. Greggory. Well, he's on vacation so his boss is doing the surgery.
Please keep Dr. Dunn in your prayers.
Adam
- Posted from a mobile device
Please keep Dr. Dunn in your prayers.
Adam
- Posted from a mobile device
Update
The surgeon came out not too long ago. His platelets aren't doing their job when they put his central line in (blood isn't clotting well). She thinks they might change the approach on the surgery and not try to take out more tumor and only focus on the cyst. Everyone is on board with this decision - it's the best for John and poses less risk.
Adam
- Posted from a mobile device
Adam
- Posted from a mobile device
Under
We just left John in his pre-op room. He should in surgery in the next hour or so.
Adam
- Posted from a mobile device
Adam
- Posted from a mobile device
Sunday, June 13, 2010
Tomorrow
Tomorrow is the big day. His surgery starts at 730 in the morning and will go 12 hours or so. He is heading to pre-op at 530am and I plan on arriving around 6. Please keep everyone in prayer, including the surgeon, staff, family, friends and of course, John.
Wow, seems eerily familiar.... http://prayersforjohn.blogspot.com/2009/11/tomorrow.html
- Adam
Wow, seems eerily familiar.... http://prayersforjohn.blogspot.com/2009/11/tomorrow.html
- Adam
Group prayer
I got to take part in a prayer group today for my dad at his house. He's so fortunate to be a part of a church like Encompass. It's small enough that everyone knows everyone, and because of the "small town feel", you can really see the passion and care that everyone has for each other. Thanks, Kevin, for leading!
Adam
- Posted from a mobile device
Adam
- Posted from a mobile device
Friday, June 11, 2010
Portacath
John's first stint in the hospital and all his subsequent doctor visits have turned him into a human pin cushion. The top of his hands always have a little hit of purple to them thanks to all the lab work that's been drawn. So, now John has his very own portacath which was surgically implanted on June 8th. Having this will allow him to no longer have his hands tied up and it will give the nurses the advantage of being able to get meds to him and into his blood stream faster.
More info on a portacath can be found here:
http://en.wikipedia.org/wiki/Port_(medical)
More info on a portacath can be found here:
http://en.wikipedia.org/wiki/Port_(medical)
The now and then
As promised, here is a very high level summary as seen by me (Adam).
The past few months have seen there fair share of ups and downs. We've had some good days and bad, happy times and sad. The chemo and radiation is not an easy thing to forgo, but all things considered, John did remarkably well and didn't get too physically sick.
A little less than a month ago John finally had a follow up MRI which revealed that there was a cyst that has formed in his head. A cyst in the brain in case you were wondering is a sphere filled with fluid, similar to a miniature balloon filled with water. This one is isolated in the rear of the area where the tumor was. We were told that getting a cyst after this type of surgery although rare, usually doesn't cause too much worry depending on what its doing. In John's case, we found out that this cyst is pushing against his left brain hemisphere. Because of the pressure it has begun to mess with his motor skills. With all this new information, and after his case being presented it was unanamously recommended that another surgery should be done. This unfortunatly was not what we wanted to hear - as John said he would NEVER go through that again.
About three weeks ago, and after a lot of prayer, a decision was made that he would go through with a second surgery. In this surgery they would drain the cyst and remove as much of it as possible and then place a sort of plug in his skull to allow for future draining. The plug is... well... imagine a cork being stuck in your head. Through this cork someone can take a needle and go through the cork to get into your skull. This is essentially what he is getting. Once it's in, it will sit below the surface of the skin but will allow a doctor access to drain the cyst in the event that it fills back up.
Also shown by the MRI was new growth of the cancer. Although it wasn't entirely expected, it was inevitable. The good news is it has spread only a little and while the surgeon is in his head working on the cyst, he can take out a little bit more of the tumor.
The surgery is set for Monday, June the 14th early in the AM. It is pretty much the exact same surgery as last time.
Please keep John in your prayers, as well as his family. Thanks.
The past few months have seen there fair share of ups and downs. We've had some good days and bad, happy times and sad. The chemo and radiation is not an easy thing to forgo, but all things considered, John did remarkably well and didn't get too physically sick.
A little less than a month ago John finally had a follow up MRI which revealed that there was a cyst that has formed in his head. A cyst in the brain in case you were wondering is a sphere filled with fluid, similar to a miniature balloon filled with water. This one is isolated in the rear of the area where the tumor was. We were told that getting a cyst after this type of surgery although rare, usually doesn't cause too much worry depending on what its doing. In John's case, we found out that this cyst is pushing against his left brain hemisphere. Because of the pressure it has begun to mess with his motor skills. With all this new information, and after his case being presented it was unanamously recommended that another surgery should be done. This unfortunatly was not what we wanted to hear - as John said he would NEVER go through that again.
About three weeks ago, and after a lot of prayer, a decision was made that he would go through with a second surgery. In this surgery they would drain the cyst and remove as much of it as possible and then place a sort of plug in his skull to allow for future draining. The plug is... well... imagine a cork being stuck in your head. Through this cork someone can take a needle and go through the cork to get into your skull. This is essentially what he is getting. Once it's in, it will sit below the surface of the skin but will allow a doctor access to drain the cyst in the event that it fills back up.
Also shown by the MRI was new growth of the cancer. Although it wasn't entirely expected, it was inevitable. The good news is it has spread only a little and while the surgeon is in his head working on the cyst, he can take out a little bit more of the tumor.
The surgery is set for Monday, June the 14th early in the AM. It is pretty much the exact same surgery as last time.
Please keep John in your prayers, as well as his family. Thanks.
Thursday, May 20, 2010
A long time
It has been quite a while since this blog has last been updated. Since the last post there has been some good news and stories along with some not so good news. In the upcoming days and weeks I'm going to try to post more news and information, both old and new.
As always, prayers are still very much needed and preferred.
- Posted using BlogPress from my iPhone
As always, prayers are still very much needed and preferred.
- Posted using BlogPress from my iPhone
Thursday, February 4, 2010
Radiation almost Done!
I have just two more radiation treatments and that phase of my treatment will be over with. Although the actual radiation treatment is painless and relatively quick, the side effecte of chronic fatigue is getting very tiresome. Having a total lack of energy is difficult to deal with. To further compound the problem, I found out last week that I am also suffering from hypothyroidism (i.e. the thyroid gland is not producing sufficient amounts of hormone). According to the doctor, his is probably an unrelated condition to my brain cancer, and is easily treatable by taking anoher pill each day, which I began last week. Symptoms of this are also fatigure, so it is understandable on why I have felt so tired. With the radiation ending tomorrow, and his hormone supplement, I am praying my fatigue will disipate in another week or so.
I have another meeting with my oncologist next week to discuss what comes next. I believe the plan is to take a 1 month haitus from the chemo and then restart at double the current dose at the end of 30 days. New imaging will be done in the near future to see what the current state of the cancer is.
I spend most of my day in scripture and prayer. When not doing that, Caren and I continue to run lots of errands each day relating to the building of our new home which we plan on moving into in late March. We are excited about the move and it certainly has proven to be a pleasent distraction from my health issues. We coninue to see small blessings nearly every day in the midset of this 'storm', and remain convinced that if we remain faithful and obedienet, the Kindom will be served through this trial. His transforming power is certainly working in both of us.
Thanks to all for any and all your prayers, they contiue to sustain us. May God richly bless you all.
Love, John and Caren
I have another meeting with my oncologist next week to discuss what comes next. I believe the plan is to take a 1 month haitus from the chemo and then restart at double the current dose at the end of 30 days. New imaging will be done in the near future to see what the current state of the cancer is.
I spend most of my day in scripture and prayer. When not doing that, Caren and I continue to run lots of errands each day relating to the building of our new home which we plan on moving into in late March. We are excited about the move and it certainly has proven to be a pleasent distraction from my health issues. We coninue to see small blessings nearly every day in the midset of this 'storm', and remain convinced that if we remain faithful and obedienet, the Kindom will be served through this trial. His transforming power is certainly working in both of us.
Thanks to all for any and all your prayers, they contiue to sustain us. May God richly bless you all.
Love, John and Caren
Saturday, January 9, 2010
Update
I have completed my 3rd week of radiation and chemo treatments, and all is well thus far according to the Doc's. The only side effect I continue to have is a constant fatique (which is very normal and expected side effect of the radiation treatments); but no negatives with the chemo which is a huge Praise to the Lord. In another month, they double the dose of my chemo, and that may be a different story, but for now, the Lord has smoothed out my path. Apparently, the chemo does a number on your bone marrows ability to replace red blood cells, so I am still awaiting the results of some tests taken yesterday on that, but the doctor doesn't seem to worried at this point.
Caren and I were able to spend some time with another couple from church who has a reoccurence of cancer. It was nice to be able to empathize with their situation and pray together for God's provision on us as well as others we know from church undergoing their particular 'storms of life.'
With the fatigue issues, I am usually in bed my 8 or 9 o'clock, and then inevitably wake up at 1 or 2 in the morning. My routine has been to get up and read and/or study scripture for a few hours until I get tired again, and then go back to sleep for a few hours. I then spend most of the morning doing my normal Bible study routine; the best part of my day. I am working hard to memorize more scripture, something I have always stuggled with. The Lord definitely has granted my wish for a thirst, but I admit to having trouble in the memorization. My short term goal is to memorize a minimum of 15 minutes worth (that is how long my radiation treatment lasts). Now, I have to repeat over and over the same few passages I have committed to memory to take up this time plus some power praying.
Thanks again to all for your continued prayers and support, Caren and I are so grateful.
We love you all, John
Caren and I were able to spend some time with another couple from church who has a reoccurence of cancer. It was nice to be able to empathize with their situation and pray together for God's provision on us as well as others we know from church undergoing their particular 'storms of life.'
With the fatigue issues, I am usually in bed my 8 or 9 o'clock, and then inevitably wake up at 1 or 2 in the morning. My routine has been to get up and read and/or study scripture for a few hours until I get tired again, and then go back to sleep for a few hours. I then spend most of the morning doing my normal Bible study routine; the best part of my day. I am working hard to memorize more scripture, something I have always stuggled with. The Lord definitely has granted my wish for a thirst, but I admit to having trouble in the memorization. My short term goal is to memorize a minimum of 15 minutes worth (that is how long my radiation treatment lasts). Now, I have to repeat over and over the same few passages I have committed to memory to take up this time plus some power praying.
Thanks again to all for your continued prayers and support, Caren and I are so grateful.
We love you all, John
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